Special interest group
Education & Advocacy
Lead: Nathan S. Rosenberg, MD
Education & Advocacy is the Society's newest group. It curates the Society's guidance for families and connects families with the clinicians and researchers who study posterior fossa syndrome.
What the group is building
Guidance for families
Plain-language pages for families before surgery and, soon, after a posterior fossa syndrome diagnosis. Guidance for families
Finding care
Regional guides to experienced surgical care, including the hospital resource map for the United States. Find hospitals in your region
Families: help shape this work
Family members of children with posterior fossa syndrome are warmly encouraged to take part. Tell us what information would have helped you, review new materials before they are published, and help us build a network of families who have been through this. The Society's Board includes a Family Advocate.
Families can also connect in the Posterior fossa syndrome parents group, a private Facebook group run by The Danny Green Fund.
Ask to join the family Facebook group
The Society cannot give advice about an individual child's care.
Clinicians and researchers
Members can contribute by reviewing family materials in their area of expertise, writing regional guides for their own countries, and sharing family resources from their centers.
Contact the group
Write to info@posteriorfossasociety.org or contact the group's lead. Clinicians and researchers who are not yet members can apply through our membership page.